OPEN-HEALTH-DATA

Open Health Data open data / decentralized identity standard.

Définition

Open Health Data designe l'EU proposed European Health Data Space EHDS Regulation (proposed mai 2022 par European Commission, final adoption attendue 2024-2025 + transposition phased 2026-2027+) qui constitue le first EU common data space for health, primary use enables citizens access + control own health data + portability across EU border + secondary use enables research + innovation + policy via permission-based access pseudonymised health data, foundational EU Open Health Data ecosystem complementary national Open Banking-style health initiatives. Standard + framework specifications detail interoperability + identity + privacy + data sharing + open APIs + multi-stakeholder governance + ecosystem adoption industry verticals (banking + finance + health + insurance + energy) + alignment regulations EU PSD2 + GDPR + FAPI + UK Open Banking Standard + multiple national implementations 2010s-2024+.

Origine

EU EHDS Regulation proposed mai 2022 ; political agreement EU Council + Parliament mars 2024 ; final adoption attendue 2024-2025 ; phased transposition 2026-2027+.

Exemple en contexte

EU citizen receives medical care during travel from home country France to Spain : EHDS 2027+ enables doctor in Spain access citizen's relevant medical records (allergies + medications + diagnoses + recent lab tests) from French Electronic Health Record system via EHDS standardized HL7 FHIR APIs + IHE-based exchange standards + EU-level patient identity matching, providing safer + better care without language barrier complications.

Termes liés

• Open Banking NextGen — similar Open ecosystem approach.